European Cancer Organisation

NEWS: ECCO partners with the Collaboration for Oncology Data in Europe to explore pragmatic outcomes measurement

The European CanCer Organisation (ECCO) and the Collaboration for Oncology Data in Europe (CODE) are embarking on a joint initiative to explore outcomes measurement within cancer care. The goal is to further explore the topic of outcomes measurement to identify metrics of high clinical value, meaningful for both patients and clinicians, but which can be measured efficiently and be put “at the right scale”. This work will be part of the longer journey towards comprehensive outcomes measurement. “ECCO’s mission is to improve outcomes for cancer patients through the delivery of higher quality cancer care. This partnership allows us to contribute to the debate on how to move towards delivering greater value to patients and healthcare systems. We are therefore delighted to be working with CODE to better understand which outcomes can be measured accurately today, to explore their value and the associated cost of capturing this data, and to contribute towards the journey to comprehensive outcomes measurement,” said Prof Philip Poortmans, ECCO’s President.

“Innovations in the treatment of cancer are offering increased options and choices for clinicians and patients,” added David Kerr, Professor of Cancer Medicine at the University of Oxford and Chair of CODE’s Clinical and Analytical Steering Committee. “Valuable work has already been done to define comprehensive outcomes approaches for a number of cancer types by organisations such as ICHOM. However, the systematic evaluation of outcomes that can be generated from the day-to-day clinical setting, particularly outcomes that matter to patients, is still at an early stage due to the complexity of cancer and cancer care. We look forward to working with ECCO on this important project.” 

The research project will explore the value of different outcome metrics, while assessing the clinical insight that can be derived and the feasibility, complexity and challenges associated with sourcing the required information. It also aims to help inform the understanding of the drivers and challenges of information gathering for outcomes based health systems and recognise what can be achieved with existing real-world datasets.

ECCO and CODE will be capturing insights from interviews with stakeholders from various organisations within the European oncology community to ensure that a wide range of views is included in the project. The interviews will be analysed and contribute to a report developed by ECCO and CODE. This will then offer an opportunity for broader engagement and discussion of the research findings, along with additional perspectives on pragmatic outcomes measurement, at the ECCO 2018 European Cancer Summit from 7-9 September 2018.

For more information on the project, please contact Richard Price, EU Policy Affairs Manager, ECCO, at or Julia Levy, External Engagement Lead, CODE at

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